Article: Understanding VS Explaining Both are difficult, understanding if you don’t know what it’s about and explaining if you don’t know what’s happening.
You can’t expect a person to understand if they don’t know what it’s about or don’t know what to ask eg: they might see a person with Cerebral Palsy experiencing jerks, spasms or chronic pain, but they don’t know why it’s happening. What happens when a person with Cerebral Palsy experience the jerks, spasms or chronic pain? That’s quite tricky to explain as we don’t always know why our CP body reacts certain ways. Eventhough there are times we know what triggers it there are also times we don’t always know why or when it will happen and what causes it to happen. So when we try to explain it there are times that we get the following response: “ oh, I get the same pain and spasms. You must just get over it” or “You just have to fit in. No one is going to feel sorry for you”. These are just a few examples I’ve mentioned.
Let me explain: We don’t want any one to pity us ; your spasm, chronic pain is not the same as what a person with Cerebral Palsy experience. So you’ll probably ask: “ What’s the difference ?” I’ll explain it the best way possible:
- When a non-disable person experience pain they can control it as their muscles are voluntary. With voluntary muscles they have much more control, which causes less spasm/ cramps, pain and therefor the possibility of inflammation are less. - When a person with Cerebral Palsy experience pain they cannot control it as their muscles are involuntary and they don’t have much muscle control ( if any at times), which causes more spasms, more pain, then again spasms and more and more pain, which causes inflammation.
This is really like a “inner- body” ripple effect. It can be extremely painful. Some of those with Cerebral Palsy experience excruciating pain. There are medication, medical practitioners and Neurologist that can prescribe medication specifically for CP muscles to ease the spasms and jerks.
You might ask: “Why does a person with CP have involuntary muscles? “The messages are n communicated from the brain to the body, but the nerve and the muscles don’t always receive the messages. So it literally causes a communication gap / distortion of messages, because the nerve doesn’t know what the muscle wants and vice versa. I call it “chaotic communication”. Then the muscle tone increases and that’s what you don’t want. Sometimes mild or sometimes extreme depending on the severity of the CP.
Another way I explain it to a person is by asking them: “Can you stop your eyes from blinking?”
The response: “No, it’s to difficult. I have no control stopping my eye to blink”.
Now that’s because the muscles that causes the eyes to blink are similar to involuntary muscles.
I hope what I’ve explained above gives you a bit more understanding of what Cerebral Palsy is.
Please feel free to ask questions or even give feedback |